Since Amanda's last mapping a month ago she has been hearing more and more each day! In fact she just posted a new blog entry with photos of some of the new things she is hearing.
It's pretty amazing since she has only been activated since August (4 months ago) and had NEVER EVER heard anything before.
One of Amanda's goals for herself was to be able to have people call her name and have her be able to answer and say, "What?"
After she posted her blog entry tonight, she was surprised to hear herself kissing her chihuahua, Goldy.
Last week Amanda and I were playing cards and Amanda could hear the difference between 8 and ace! They looked the same on the lips but she could hear the "t" at the end of eight and the "s" at the end of ace.
Check out her blog entry: Deaf Girl Amanda
amandakristineconde.blogspot.com
And below, if you didn't have a chance to view them, are two videos of us doing two elf dances; a Disco Elf dance and a Country Elf dance. Amanda can more easily follow the music and dance moves since her cochlear implant.
The videos will be available until mid January. Let me know what you think of our fabulous moves!
Busy couple of days! Amanda received an honor roll
award last Thursday. She often gets positive behavior
recognition, but seldom realizes the same academic
triumph. So we were quite pleased, and of course
attended the award ceremony.
The next day, parent teacher-teacher conferences
were held. Amanda is in 8th grade and rotates for
8 periods among 7 teachers plus a speech therapist
(4 times weekly) and an audiologist (once a week.)
Mr. Zarembka-Math Ms. Maxwell-English
Ms. Chute-Family Life Mr. Branton-History
Mr. Tarpay-Science Ms. Caustin-Speech & Language
Mrs. Gleicher-Reading
Her Adapted Physical Education teacher, Ms. Hoffee was unavailable as was the
Audiologist, Ms. Rogan, so unfortunately, we didn't get pictures of them. However, we maintain regular contact with them so we know how she's doing, but I would've liked pictures.
All of Amanda's core academic teachers (English, Reading, Science, History and Math) are deaf. Since the focus of the school is on instruction through ASL, the SLP and the Audiologist support what instruction she is getting in the classroom.
Amanda has only been activated less than four months and had NEVER EVER heard anything prior to implantation. Hearing aids did not benefit her although she wore them diligently, especially in her early years hoping to hear something. She began asking for an implant at age 10 and after major insurance battles, was finally approved for surgery just before she turned 14.
Both the SLP and the Audiologist have noticed improvement in speech production this school year. And since her last mapping, we have all noticed a very positive effect on what she is able to hear. She is increasing her accuracy and consistency in being able to distinguish between individual phonemes, words, phrases and sentences.
And she's immensely able to hear the ruckus that goes on in deaf classrooms. In fact she sometimes acts as an interpreter for students trying to get deaf teachers attention. The student will yell out and Amanda will let the teacher know the student wants them. THAT would never have happened before. So it's an interesting way to measure progress, but progress it is.
This is not my typical posting regarding Amanda and her cochlear implant journey, but it is something that does affect her and the rest of our family. Amanda has two stepbrothers: my sons. One of them is straight. The other one is gay. We love them both and believe they deserve equal rights in all areas, including the right to marry whomever they fall in love with.
We participated in the nationwide protest November 15th against the passage of Proposition 8 here in California November 4th. Above are some photos of us at the Redlands City Hall.
It was a heartwarming day and we met many diverse people from all walks of life, gay and straight, who were standing on the corner for one sole purpose; to support equal rights for all and to repeal Prop 8.
I found this video on jointheimpact.wetpaint.com and decided to post it here because I think it really speaks to love and acceptance of all families and justice for all, not just for some.
On a connecting note to the theme of this blog.....Amanda did hear the supportive honks of cars that passed by!
It is not captioned, which, if you've been following my blog, you know that I caption all of my video clips.
However, I listened to it several times and can tell you that at the beginning and at the end, the marchers are chanting, "What do we want?!" "Equal rights!" "When do we want it?" "Now!"
In another part of the video the marchers are chanting, "Gay, Straight, Black, White! Marriage is a Civil Right!"
The music playing throughout the video is called, "Nothing In Between" by Stuart Davis. The lyrics and his website are printed below.
In Honor of Timothy Glenn
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Today’s the celebration of life event for astrologer Timothy Glenn. In
honor of that and of Tim, I’m posting his favorite journeying music, Novus
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Hard Work
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When I decided to revive my blog and write about grief, I resolved to put
no pressure on myself to make big changes, accomplish anything major, or be
excep...
Journalism vs. Advocacy
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journalism, n. – writing characterized by a direct presentation of facts or
description of events without an attempt at interpretation. The following
artic...
Breathing appointment
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I forgot to update my Leeds appointment where I go for my breathing
appointments. The doc was super happy about my breathing since I starting
using my brea...
Record Harvest
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Finally some good news!
Due to the best crop in years, and record harvesting conditions, the price
of snow has fallen to record low prices!
Today, March 8...
Me, Myself and Diabetes
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Let me tell you my story I was 23 and none of my family had diabetes. Blue
circle for diabetes The nutrition was already just a bowl away Just born I
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Marriage Equality Breaking News
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Amsterdam City Hall, April 1, 2001 - Photo by Rex There are four frequently
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Surgery Day
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Living far from the cochlear implant center means a significant amount of
planning is involved for each appointment. For Nolan's surgery, the boys'
grandma...
Dear blog -- I'm bringing you back to life.
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After years away from this blog I wasn't even sure it still existed. Well,
it does so I'm bringing it back to life. I always enjoyed it. I have been
thi...
Music is My Life
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Music in when.
Life is all about dancing, to fulfill the minutes.
Let's get together and use the circulation of the music.
How do we discuss with each other?...
Fantastic Four (2005) Download Movie
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Play Movie *Fantastic Four* in HD Quality. Watch Full Movie *Fantastic Four*
in Top Quality. Full Streaming *Fantastic Four* in Best Look Video Format.
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It’s been quite a while….
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I almost didn’t remember the password to my own website! Its been a very
cold and very snowy winter. The word “very” doesn’t even underscore the
brutal...
Advanced Bionics Family Fun Day
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Are you considering in getting a cochlear implant? Not sure which brand to
go for? Why not spend a day at Sherwood centre parc, Nottingham to find out
all ...
And the winners are....!!!!
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It all started as an idea to promote awareness for International Cochlear
Implant Day, which was on February 25th. I asked some members of my Italian
Fo...
Googlesta ja hakukoneoptimoinnista lyhyesti
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Google on maailman suosituin hakukone. Google kehitettiin 90-luvun lopulla
kun Stanfordin opiskelijat Larry Page ja Sergei Brinin päättivät luoda
uudenlais...
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Advanced Bionics Information Day Are you considering cochlear implantation? Do
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proc...
Vanderbilt Image-Guided Mapping Test Results
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You know it's time to update your blog when total strangers email you
asking for updates :) I had results in hand Monday afternoon but it's been
a busy, st...
Different Lives
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Someone who lost their hearing late in life once remarked of me, "She's
luckier than me because she never knew what it was to hear."
Let me tell you what I...
I am thankful I can Hear..
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It has been months since I blogged due to the new illness that is
horrifying. After being diagnosed with cancer this took a toll on me. But,
I have to say ...
HLAA July/August 2012 Magazine Cover
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I have had several requests for links to the JULY/AUGUST 2012 Hearing Loss
Association of America magazine that features my hearing loss journey. So,
I th...
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Why I Choose Not to Drop Sign Language for My Daughter Who Has a Cochlear
ImplantBy breastpumpreviewsI started looking at cochlear implant options
for my d...
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FOR LOOP
This program is a loop statement because it will appear the output when you
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Cats, cats, and more cats
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Beginning a new year always gives me pause to reflect on the passing on the
former one and to be conscious of the subtle tinge of excitement over the
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I had a CI moment few days ago, after all those snow we had, for the first
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the re...
I'm speaking in Wheaton, IL, Dec 7, 2010
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Here's an invitation to ladies in the Chicagoland area to come hear me
speak at the First Baptist Church of Wheaton, Illinois, on Tuesday morning,
December...
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This will be a quick post to share my great experience with the Harmony for
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Phone and Music with CI nearly 2years on
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Well, its have been a while since I have written any post about my cochlear
implant experience.
This year, 2010, have been like a rollercoaster but where ...
Some Updates
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Well since its been about ten forever's since I updated I figured I would
type up a few.
I went to a music festival on Memorial day weekend and that eve...
Church Music and Hearing Loss
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I wrote this in response to a leading question from a writer: "What's the
point of singing in church?"
(Thanks Michelle! Go read her post here:
http://the...
ASL-CI
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I’m so impress this video from YouTube. My CI friend sent me of this video
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proof it...
My How The Time Just Flies
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Hi ya'll.....I have realized it has been quite a LOOOOOONG time since I
have been here. As I have said before summer months are horribly busy for
us. And n...
im terrible blogger
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sorry this took me so long to write, i've been neglecting this blog oops!
well after 3 months of wearing hearing aid my hearing deterotiate to the
point tha...
Brought to Tears
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As I lay awake at 3:00 A.M. to reflect on the passing of the last day, I am
still moved to tears. I came to a realization three things. One, I am so
blesse...
Universal Studios Los Angeles
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June 1, 2009 the 8th graders from the deaf school will go to Universal
Studios for our end of the year trip. We will have fun at Universal. I am
excited ab...
Music Video Featuring Sign Language
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Every morning before I begin to assemble myself, I read Perez Hilton as
well as CNN news. I happened to notice that the Perez posted a video by an
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Happy Thanksgiving!!!!!
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Hello Everyone...
I wanted to say Happy Thanksgiving to all. As always...it's been a while
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I just had a birthday earlier this week and I'm...
Sure Things
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Oprah's Top Twenty Sure Things:1. What you put out comes back all the time,
no matter what. (This is my creed.)2. You define your own life. Don't let
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Finally, the day arrives to turn on the implant. Just wanted to let you all
know how today went. The implant was activated late this morning around
11:45. ...
Celebrating our 5th years...
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WOW, it was 5 years ago today we were implanted and we became the Bionic
man/woman. It was a moment that we never forget and everyone at the
hospital and ...
I am stepmother to 15 year-old Amanda. We met when I was her teacher when she 3. She was my student in a class of deaf preschoolers using ASL.
She had been wanting a cochlear implant since she was 10. She finally received a CI, July 14, 2008 at the age of 13 and was activated August 12, 2008 at the age of 14. She is currently hoping to become bilateral and we are working on that process.
Follow Amanda's CI Journey by reading, looking at photos and watching captioned video clips.
Thanks for stopping by!