tag:blogger.com,1999:blog-4765515014490280250.post8771254801087206404..comments2022-08-13T11:26:36.163-07:00Comments on Amanda's Cochlear Implant Journey: Amanda's 6th MappingJennifer Bruno Condehttp://www.blogger.com/profile/10424085171206339106noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4765515014490280250.post-43840906631521743362008-10-13T22:50:00.000-07:002008-10-13T22:50:00.000-07:00Charlotte, Yeah, some journey, indeed! Nope, she...Charlotte, Yeah, some journey, indeed! Nope, she didn't have an xray done after her surgery. Sure would like to know what's going on in there with the electrode array and would like to be able to turn on more electrodes without this ridiculous twitching.<BR/><BR/>Katie, you're right. So many one-siders want to become two-siders. In Amanda's case if we can't get to the bottom of her right side, and she goes bilateral, we might have a better outcome with the left side. <BR/><BR/>I think we should coordinate it so you, Charlotte and Amanda can all have surgery at the same time. :-)<BR/><BR/>One weird thing is that Amanda can't hear her own voice. Today she got some twitching when she used her voice, but nothing auditory. <BR/><BR/>I saw Susie sitting in a shoe shine shop.<BR/>Where she sits she shines, and where she shines she sits. <BR/><BR/>Thanks, Karen. Yes, it does certainly affect us all. Xray! Xray! Xray! <BR/><BR/>Valerie, consider Amanda hugged! Thanks for the prayers to figure out what goes on in there!<BR/><BR/>Thank you Debbie, we're sure hoping for good things, too! Good luck with your journey for bilateralness. <BR/><BR/>Jennifer :-)Jennifer Bruno Condehttps://www.blogger.com/profile/10424085171206339106noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-7220977997492428742008-10-13T20:41:00.000-07:002008-10-13T20:41:00.000-07:00Hang in there and it will all solve the problems s...Hang in there and it will all solve the problems soon. WOW, you want to go bilateral and I'm rooting for you. We not even bilateral yet but hopefully, next year.Debbie/Stevehttps://www.blogger.com/profile/13756577573134148616noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-10354380421918649592008-10-13T19:11:00.000-07:002008-10-13T19:11:00.000-07:00Amanda is the poster child for a fantastic positiv...Amanda is the poster child for a fantastic positive attitude. I pray they find out what is going on and fix it. Give this gal some sound. Jennifer, I love all the posting, just wish I had time to get all my reading done. Give Amanda a CI hug from me, I am so proud of her.Valeriehttps://www.blogger.com/profile/17026325968244954541noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-78572029743819503232008-10-13T16:13:00.000-07:002008-10-13T16:13:00.000-07:00I think Amanda has been a great sport about all of...I think Amanda has been a great sport about all of this. It truly is interesting that one minute she hears certain things and then the next she does not. I agree that the x-ray sounds like a great idea. Hang in there Amanda...and family too. I know this affects everyone! I hope it gets better.Karenhttps://www.blogger.com/profile/07887042026392689221noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-16576053549442202882008-10-13T01:59:00.000-07:002008-10-13T01:59:00.000-07:00Sorry i was half asleep when i wrote the previous ...Sorry i was half asleep when i wrote the previous post! Yeah a Xray would be good idea and a step forward in finding out why is it causing her to twitch.<BR/><BR/>Regards<BR/><BR/>C xCharlottehttps://www.blogger.com/profile/08878660057038399149noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-3643097273121234462008-10-13T01:48:00.000-07:002008-10-13T01:48:00.000-07:00I think everyone who just recently had a C.I just ...I think everyone who just recently had a C.I just want to go bilateral. I want another one too and I have asked my audio and they said after i have had this left implant for a little longer we could try asking for a 2nd one. <BR/><BR/>Hopefully i'll be able to get a 2.<BR/><BR/>I glad that she like the C.I but hopefully things will get better for her after she's had a xray n some other test so see what really cause the switching. <BR/><BR/>I have only got 13 electrodes since they couldn't fit all of them in as my cochlear is small but only 12 of them switched on.<BR/><BR/>The good thing is that she is able to hear goldy tag and some other envouirments sounds.<BR/><BR/>by the way thoses 's' word you have given me obvouisly did help me :-P I actually said it to my mum that day after a few practise and she was shocked! :-D <BR/><BR/>:) keeep posting and my fingers are cross for Amanda to get better <BR/><BR/>katie xxKatie-Louise's bloghttps://www.blogger.com/profile/09525643405742999176noreply@blogger.comtag:blogger.com,1999:blog-4765515014490280250.post-12745259620127085762008-10-13T00:00:00.000-07:002008-10-13T00:00:00.000-07:00Wow thats some journey Amanda's going through. I w...Wow thats some journey Amanda's going through. I wonder if Amanda had her Xrays done after her Operation to see where the coil lies... Do you think she would need a xray/scan (not MRI obviously!) just to check that the coil is inserted properly? <BR/>4 electrodes doesn't seem much isn't it. I really hope you all would get bottom of this and for Amanda to contiue her hearing. I am pleased that Amanda got wonderful audiologist that went through every possible route to make sure Amanda is comfortable with her CI.<BR/>Yeah, I want go Bilateral too... <BR/>Got your email thanks. Glad it made Amanda's day. CxxCharlottehttps://www.blogger.com/profile/08878660057038399149noreply@blogger.com